Saturday, September 26, 2009

Kaitlyn Ava

Yep, we finally picked a middle name.  She's doing great.  She still has a few episodes a day of apnea and bradycardia, where she forgets to breathe and her blood pressure drops; pretty common for babies this age, and most of the time she remembers to resume breathing on her own (they're on top of it if she needs help).  She's eating from a bottle now, and is digesting her food better.  Yesterday they removed the restriction on Shelly, so she's been able to go in to see Kaitlyn.  We've been able to hold her, and to help feed, bathe, and change her.  And we've each catheterized her a few times, which we are getting used to.  They tell us most newborns resist cathing a lot more than Kaitlyn does, so she probably has less sensation in the area; thus, it's more likely that she'll need to be cathed throughout her life.  But we expected that would be likely.  She's doing pretty well overall; no increase in head size, lots of strength and mobility in her legs, and her back is healing well.  A nurse from the Fetal Treatment Center who sees all the MOMS kids tells us that her back looks fantastic.

Shelly's mom flew in yesterday morning, and she and Mike brought Damon and Audrey in to the hospital for a few hours yesterday and today.  This afternoon we said our goodbyes, and they all flew back to Hurricane; we'll stay here until Kaitlyn is ready to be discharged, hopefully a week and a half or so.  We'll really miss them, but it will be good to rest a little while so Shelly can heal, and so we can figure out how to care for a spina bifida baby, regroup, and prepare for the months ahead.


7 comments:

  1. Oooo, those lovely eyes! She's a beauty! Thanks for sharing our sweet Kaitlyn Ava. The family photos are a treat, and she looks fantastic. So do you, Shelly! Can't wait to see you three in a couple of days!

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  2. We are waiting to see you. Rest up. You return to Texas will be a welcome treat for us. I will continue to hope for the best. We love you.

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  3. She is just precious. Congratulations!

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  4. Does that mean you get to go home in 10 days or so???? Hooray!! BTW, Damon and Audrey are looking very grown-up these days.

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  5. I can totally see a resemblance to Audrey in that first picture. I almost thought you'd switched out baby pictures on us. =P

    It's a beautiful name, and I'm so happy to hear that things are going well. What a wonderful treat it must be to have the family all together for that brief moment--here's to hoping you're all reunited for good by next weekend! We love you!

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  6. What a nice name for her. It was nice to see your whole family together in a photo, everyone looks so good.

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  7. I love her name! She is so so so cute, and I am so glad she is doing well. What a trooper! Can't wait to meet her!

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