We were up bright and early this morning to take Kaitlyn to have an MRI. They had to put in an IV to sedate her throughout. She did well, but when they woke her up, they had to give her oxygen for awhile, and she was quite drowsy all morning. So, before I explain what the MRI showed, you should know that when I had the two MRI's during the pregnancy, they showed that Kaitlyn's Chiari II malformation went down to the C3 vertebra. That means that her brain had been pulled down by the suction that the opening on her back had caused. Kaitlyn's Chiari was slightly worse than the average baby with spina bifida (about C2). My theory is that she had an open lesion (not covered by a sac), and thus there was a greater suction. That, I believe, is also the reason why her ventricles were so small before the lesion was closed during fetal surgery. Once closed, the suction stopped, and her ventricles began to slowly fill with fluid. The last week of my pregnancy, her vents were measuring 14 and 11, which is slight hydrocephalus. Since birth, those numbers have held steady and not increased. We'll keep watching.
So the great news from the MRI today is that her Chiari has completely reversed. Her brain is now in a normal position, which is awesome. We are so grateful that we were able to do the surgery. It was definitely not an easy journey, but we choose to believe that all of the positive developements that we've seen in our daughter are largely due to the early intervention. We're thrilled at each bit of good news.
It's looking like she'll be released by Tuesday of next week. That would put me back in Texas in a week! Hooray. Then Kendall will drive to Utah, pick up the kids, and continue the 24-hour drive down to Houston. I can't wait to have all of us together again. There are 2 little ones that are just waiting to be tickled and smooshy kissed.