Sunday, November 22, 2009

Great news

We got some fantastic news this week. The pediatrician at the Houston spina bifida clinic was amazed at Kaitlyn's leg strength and movement, and told Shelly that she would definitely be able to walk someday! She said her leg function was about the same level as kids with lesions starting at the S1 or S2 vertebrae (meaning she may be able to walk with no assistance at all or with ankle braces), even though Kaitlyn's lesion was much higher, starting as L2 (we would have expected her to need full-leg braces and crutches, and maybe be confined to a wheelchair when she gets bigger). Of course everything is still "wait and see," but we are SO happy that things are looking so promising for her.

Our kids are all so fun right now. Damon is an incredibly sweet little boy. He is very kind to his two little sisters, and often will say to Kaitlyn, "Who's a cute baby? Who's a cute baby?" He is very helpful, and is our little errand boy. He has been going to preschool and loves to learn his new letters. He is very social, and very funny. He's been watching old He-Man episodes on Hulu with his daddy, and gets so excited when Adam and Cringer turn into He-Man and Battle Cat... his heart rate probably jumps to around 300 every time. He also has an imaginary friend named "Bony," who he only mentions once every couple days. Apparently he has "bone teeth," probably inspired by Skeletor. But he's not scary, and he tells us knows he's just pretend. The other day he was saying his prayer and just casually prayed for "the other member of the family, Bony."

Audrey is most certainly two. She gets into every cupboard, cabinet, drawer... and the way she climbs, nothing we own is beyond her reach. She is such a bruiser and always so active that she keeps getting hurt -- she burned her fingers and arm on a hot pizza pan the other day -- but she's so tough that she doesn't mind as much as we do. She and Damon love to go play in their "rocket ship," which is just one of the cupboards in our kitchen. Her vocabulary has exploded, and can pretty much communicate everything she wants to us. This morning she said, "Mommy, I so pwetty." She is always showing off, saying "Wook at me!" She loves to point out "twees" and "fwowows." She calls her daddy "Kenno." Tonight she was encouraging Damon to kick the "socco baw!," saying, "You can do it, Danin!" It is an often frustrating but very fun age.

And Kaitlyn, again, is doing awesome. She rolled from stomach to back. Her legs are SO strong; sometimes we think they are even stronger than our other kids' were. Maybe we just think that because we have to fight her kicking when we catheterize her, which we only have to do that 4 times a day now. In pretty much every other way she is just like our other kids(including the acid reflux; she's on Zantac, which helps), especially in appearance. She looks just like they did. We love all of them so much.






On another note, there is a family we got to know when we lived in the Family House in San Francisco who could desperately use any help that anyone can provide. They learned that their 3-year-old son, T.J., had a brain tumor this past summer, rushed him into surgery, and are now slowly watching and praying that he regains as much function as possible. They are wonderful parents and have been through so much, living for months on end in that house with their 9-month old son and spending all of their time in the hospital. He's going through both radiation therapy and chemo right now. Any help you can provide, even a few dollars, would really bless their family. There is a website you can donate through, www.donationsfortjgarcia.com. Thanks so much for your help.

10 comments:

  1. What fabulous news! I am so happy for you guys. You have such a beautiful family. (((HUGS)))

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  2. Super good news, you guys. Kaitlyn is such a doll. Also, we are glad to hear that Bony is still around. We had fun giving him and Damon a ride home from church the other week.

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  3. Once AGAIN, our hearts are full of gratitude. Just hearing a professional say that she will walk is such a boost to our morale! Thanks also for the darling description of your sweet, adorable kids. How we MISS you guys! Have fun with all "FOUR" of your kids (including the other member of the family, Bony), and keep these posts coming! We love you. Hugs and Kisses. ~Mom & Dad

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  4. I love your kids. They are so stinkin' cute. It makes me happy to see how much they all get along. We love and miss you, and are so grateful that Kaitlyn is doing so very well! =D

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  5. I am so so glad you are all back together as a family. You sound incredibly happy. The blessings seem to be pouring in now and I can't tell you how happy it makes me for you guys! Hooray for more good news!

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  6. Happy Thanksgiving INDEED! :)

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  7. I love to hear all the details of your cute kids. They are eatable!! Seriosuly. And so happy about the good news with Kaitlyn.
    Happy Thanksgiving!

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  8. Kaitlyn is a fighter, it's going to be hard to slow her down! That is wonderful news . . . and I hope it keeps coming!

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  9. So good to talk to you the other day. I am so happy for all of the good news. Your kids have changed so much since I've seen them, but they are all still completely adorable. I had no idea Damon was such a tow head! And I feel much more informed that I've read the past few posts. Love you much.

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